Thursday, October 23, 2008
Update on Rebecca
The tests that were run on Rebecca last week are negative. These were more tests to determine if she has some type of metabolic disorder/inborn error of metabolism. This is certainly good news! I feel like we have at least ruled that out. It's still frustrating not having a diagnosis, but the more serious diagnoses that are ruled out, the better! We'll go back to the neurologist next month to see where we go from here. We have been thinking that Rebecca's cognitive and developmental delays are related to these episodes that she has been experiencing, but I am now thinking that maybe they are two separate issues. That would be a blessing, that she isn't experiencing on-going brain damage from whatever this is. (That would have been the case if she had been found to have a metabolic disorder.) Also, although she is not yet performing on a kindergarten level at school, she continues to make slow and steady progress. She gains more confidence in herself every day and we are so proud of her! Her behavior at school seems to be improving as well. I think she had been acting out at times just due to frustration. She has such a difficult time communicating and expressing her feelings, but her language continues to build on itself, so I know much improvement is to come!